Challenging Disability Through Outdoor Adventure

Frilly Lillie's provides holidays at Kielder

Lillie Thompson

A fundraising group has been set up in memory of six-year-old Lillie Thompson.   She suffered from non-verbal autism, hydracephalus, epilepsy and hearing loss,  and sadly passed away in her sleep last September.

Since then, devastated friends of Lillie and her family have set up the Frilly Lillies fundraising group to help other local disabled children and their families enjoy an extra-special adventure holiday.

The plan is for as many families as possible to visit Calvert Trust Kielder - which Lillie loved when she visited last Easter.

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Frilly Lillies co-founder Nichola Storey said:

“The adventure holiday we had with Lillie last April was the best holiday any of us had ever had. And we want to recreate that so other disabled children from St Helens, and their families, can benefit in the same way.

Having a disabled child can be quite isolating at times. My son Ryan has non-verbal autism with a very low level of understanding. But last year’s holiday helped us all form a wider support network than we had before.

Lillie’s death was a terrible shock for everyone who knew her. I’d known her since she was a baby because she was the same age as Ryan. We all felt totally helpless.

But raising funds to send more disabled youngsters on the holiday of a lifetime is a great way to continue Lillie’s memory. Her family are really supportive of what we’re doing - it makes them happy that other children are going to benefit in Lillie’s name.”

It is hoped that the visit to Calvert Trust Kielder will now become an annual pilgrimage.


For further information about Frilly Lillies visit their facebook page.


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